Dravet Syndrome Foundation | Kids Out and About Fairfield County, CT

Dravet Syndrome Foundation

Address: 
11 Nancy Drive
Monroe , CT , 06468
Phone: 203-880-9456
41° 21' 0.4392" N, 73° 12' 22.1184" W
Contact name: 
Nichelle Dominguez, Marketing & Web Consultant
Ages for which our activities are most appropriate: 
The mission of Dravet Syndrome Foundation (DSF) is to aggressively raise research funds for Dravet syndrome and related epilepsies; to increase awareness of these catastrophic conditions; and to provide support to affected individuals and families.

Mission

The mission of Dravet Syndrome Foundation (DSF) is to aggressively raise research funds for Dravet syndrome and related epilepsies; to increase awareness of these catastrophic conditions; and to provide support to affected individuals and families.

 

We understand:

  • The ongoing need to fund innovative research
  • The urgency in finding better treatments
  • The motivation of our donors to make an impact specifically in the fields of Dravet syndrome and related epilepsies
  • The importance of transparency and accountability of not only our organization, but the researchers that we fund
  • The need for global collaboration in order to find a cure

 

 

History

Dravet Syndrome Foundation was founded by a group of parents with the purpose of expediting research to find a cure and better treatments for their afflicted children. It was established in the state of Connecticut and was designated a tax-exempt public charity in the United States in October 2009 by the Internal Revenue Service under Section 501(c)(3).

 

 

Organizational & Financial Information

As a non-profit organization, Dravet Syndrome Foundation realizes the significance of financial transparency to our supporters. We pride ourselves on maintaining operating expenses at a minimum to ensure that the generous gift of every donor truly brings us one step closer towards a cure.

 

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